European Health Forum Gastein

Europe stands at a pivotal moment for health and well-being and HLM4RARE will be there to help shape the conversation.

From 29 September to 2 October, we join the European Health Forum Gastein (EHFG) as stakeholders come together to champion health, solidarity, and equity not as costs, but as investments in a resilient future.

As the EU negotiates the next Multiannual Financial Framework, a stronger European Health Union must be part of a broader vision, one that reinforces shared values, cross-border cooperation, and trust in scientific evidence, especially for communities too often left at the margins of health policy, like those living with rare diseases.

A Europe fit for the future begins with healthier people. HLM4RARE is proud to bring its voice to this dialogue.

Follow our journey to Gastein and beyond as we continue building the case for rare disease patients across Europe.

Our session

Speakers

Javier Padilla Bernáldez

Secretary of State for Health, Ministry of Health, Spain

MEP Vytenis Andriukaitis

Group of the Progressive Alliance of Socialists and Democrats in the European Parliament

Maurizio Scarpa

Director of the Rare Disease Programme, IRCCS San Gerardo dei Tintori Research Hospital, Monza, Italy

Holm Graessner

Managing Director of the Centre for Rare Diseases, University Hospital Tübingen

Alexander Natz

Secretary General, EUCOPE

Ruth Ladenstein

Professor of Paediatrics, Head of the Clinical Trials Unit S²IRP - CCRI (Studies & Statistics for Integrated Research and Projects) St. Anna Kinderkrebsforschung e.V.

Jean Saslawsky

Chief Executive Officer, EURORDIS

Moderator

Josep Figueras

Director Emeritus, European Observatory on Health Systems and Policies

Our partners

This session is made possible through the sponsorship of: